Demographic information: age, gender, and race/ethnicity. Information extracted from transplant records.
Clinical data: medical diagnosis, transplant type, date of transplant, date of death (if applicable), and date of last follow-up. Data extracted from transplant records.
Longevity: Calculated as an exact number in months (i.e., not rounded to whole numbers). Length of survival in months, up to 42 months post-transplant. Date of death was recorded based on transplant records and then used to calculate longevity in months based on each participant’s transplant date.
Perceived social support: Using the Brief Chronic Illness Resource Survey (CIRS), a 29-item questionnaire that measures perceived social support (e.g., instrumental, emotional, informational, and appraisal) broadly across seven domains, or subscales, including doctor and health care team, family and friends, personal, neighborhood, community, media and policy, community organizations, and work. Participants rated the amount of support they received over the last three months in each of the seven domains on a 5-point Likert scale. We will calculate CIRS scores in two ways: 1) Calculating the mean score for each subscale without including the importance rating, and then averaging the subscale means; 2) Weighting each subscale score by the corresponding importance rating. Higher scores indicate greater self-reported social support while lower scores indicate less support.
Self-reported treatment adherence: Using the Medical Outcomes Study of Patient Adherence (MOS) is a five-item questionnaire that measures general adherence to treatment recommendations. Participants rated how true each of the five items was for them over the last four weeks on a 6-point Likert scale. To score the MOS, items 1 and 3 will be reverse scored, and then all five items in the MOS will be averaged together for the treatment adherence score. Higher scores indicate greater self-reported treatment adherence, while lower scores indicate less treatment adherence.